Sometimes, when people are told there is no effective curative treatment for MND, they interpret this as meaning that nothing can be done. Some will struggle on without asking for advice and treatment for symptoms, which could alleviate discomfort. They should be encouraged to talk about the symptoms they have and the potential treatments and therapies available.
It is important they have suitable support at this stage, including a point of contact to return to with questions and access to appropriate information. This could be you (their GP) or another provider.
When someone is diagnosed with MND they may take time to adjust and come back with questions some time after.
Following the diagnosis of MND, the client will likely continue to receive support, advice, and care from the MND Clinic Specialist Nurse. The nurse provides support in the following ways:
Along with the MND Clinic, support is also available from other health professionals, specialists, and providers including:
Prompt referral for diagnosis – use the Diagnostic Tool to recognise early signs of MND in order to refer to neurology in a timely manner.
Using a person-centred approach to list to and ascertain the physical, social, emotional and spiritual needs of the person with MND and their carers at each appointment. Refer to the appropriate specialist teams as necessary.
Monitor and assess symptoms, including signs of: -